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| Organisations for Anti Convulsant Syndromes Provides help and support to families with children affected by the syndrome, and raises the awareness of Fetal Anti-Convulsant Syndrome (F.A.C.S). www.oacs-uk.co.uk Fibromyalgia Association UK The UK charity site for everything you need to know about Fibromyalgia, including UK Support groups, pain management, exercise, legal information, research, and claiming benefits. www.fmauk.org Galactosaemia Support Group Promotes public awareness within the United Kingdom of the metabolic disease known as Galactosaemia. www.galactosaemia.org Living with Reflux Provides support and information to families living with gastro-oesophageal reflux (GOR or GER) and gastro-oesophageal reflux disease (GORD or GERD) and associated conditions. www.livingwithreflux.org Gauchers Association Provides information about Gaucher disease and keep families and medical advisers up to date with latest developments. www.gaucher.org.uk Association for Glycogen Storage Disease (UK) Provides support and help for families affected by GSD. Glycogen Storage Disease (GSD) occurs when there is an absence or deficiency of an enzyme needed to produce or break down glycogen in the body. www.agsd.org.uk Hypoparathyroidism UK support to children and adults affected by Hypoparathyroidism and other rare parathyroid disordersrovides supporting children and adults affected by Hypoparathyroidism and other rare parathyroid disorders. www.hypoparathyroidism.org.uk Klinefelter Organisation UK Provides information and resources to KS sufferers, their families and partners, and raises awareness of KS within the UK. www.klinefelter.org.uk National Lichen Sclerosus Support Group Lichen sclerosus (LS) is an uncommon and poorly recognised, chronic inflammatory skin disease. www.lichensclerosus.org Narcolepsy Association UK (UKAN) This site is run by UKAN as a service to people interested in or suffering from narcolepsy as well as members of the Association. www.narcolepsy.org.uk |
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