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| Congenital Adrenal Hyperplasia (CAH) Hyperplasia (CAH)? CAH is a genetic defect of the adrenal glands. A person with CAH will not be able to produce several vital hormones known as corticosteriods. CAH is treated with hormone replacement, replacing one or both of the hormones missing ... www.congenitaladrenalhyperplasia.org Crohn's in Childhood Research Association Provides support for sufferers and their families and we raise funds to support approved medical research aimed at finding more effective treatments and an eventual cure. www.cicra.org Cyclical Vomiting Syndrome A registered charity providing information and supporting sufferers and their families or those affected by Cyclical Vomiting Syndrome. www.cvsa.org.uk Dancing Eye Syndrome Support Trust Provides a link for parents of children with Dancing Eye Syndrome. www.dancingeyes.org.uk Depression UK A national self help organisation that has operated within the United Kingdom, aims to promote mutual support between individuals affected by or at risk from depression, with the aim of encouraging self help, recovery and personal growth. www.depressionuk.org Skin Care Campaign An umbrella organisation representing the interests of all people with skin diseases in the UK. www.skincarecampaign.org Myositis Support Group A UK charity providing advice and support to individuals and their families affected by Dermatomyositis, Polymyositis, Inclusion Body Myositis and Juvenile Dermatomyositis. www.myositis.org.uk Neuromyelitis Optica (NMO or Devic's Disease) Neuromyelitis Optica is an inflammatory disease of the central nervous system in which there are episodes of inflammation and damage to the myelin (fatty, protective covering of nerves) that almost exclusively affect the eye nerves and spinal cord. www.myelitis.org/nmo.htm Diamond Blackfan Anaemia Support Group Diamond Blackfan Anaemia (DBA) is a blood condition caused by a failure within the bone marrow. It is characterized by an inability to produce red blood cells (necessary to transport oxygen around the body). www.diamondblackfan.org.uk Duchenne Family Support Group Strives to provide a positive national support network for parents, their families and professionals working within or providing support services for people affected by DMD. www.dfsg.org.uk |
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