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| European Skeletal Dysplasia Network Provides an integrated research and diagnostic network for skeletal dysplasias. www.esdn.org British Snoring & Sleep Apnoea Association Promotes public awareness that snoring and sleep apnoea are generally treatable complaints and that help is available. www.britishsnoring.co.uk The Smith-Magenis Syndrome Foundation The Smith-Magenis Syndrome Foundation is a small charity run by parents and professionals; aims to provide information and support to individuals interested in SMS www.smith-magenis.co.uk The Jennifer Trust for Spinal Muscular Atrophy A national charity in the UK dedicated both to supporting people affected by SMA, and investing in essential research into causes, treatments and eventually a cure for the condition. www.jtsma.org.uk Colostomy Association Provides support, reassurance and practical information to anyone who has or is about to have a colostomy. www.colostomyassociation.org.uk Sturge Weber syndrome A rare neurological disorder of unknown incidence and origin. It is NOT thought to be hereditary. Sturge Weber is usually indicated by a birthmark(port wine stain) somewhere on the face, usually involving the eye and forehead, also similar blood vessels. www.sturgeweber.org.uk The Ann Conroy Trust (ACT) Offers support, Education & Research for Sufferers from Syringomyelia, Hindbrain Hernia (Arnold Chiari Malformation (ACM)) and Associated Conditions. www.theannconroytrust.org.uk Turner Syndrome Association of Australia A support group set up by parents and women with Turner Syndrome. turnersyndrome.org.au Testosterone Deficiency Center Aims to assist and globalise the Testosterone Deficiency, with accurate, current information for professionals and the general public . www.androids.org.uk The Thalidomide Society Supports thalidomide and similarly impaired people by providing advice and information. The organisation is user-led and assists members to meet, exchange information and share experiences. www.thalidomidesociety.co.uk |
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