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| Hereditary Multiple Exostoses Support Group The Hereditary Multiple Exostoses Support Group exists to support families affected by this rare condition. HME is usually but not necessarily an inherited condition which can produce bony lumps close to the end of any bone, ... www.hmesg.org.uk Stickler Syndrome Support Group provides a starting point for people wanting information on Stickler syndrome and easy to follow instructions for accessing other sources of information on Stickler syndrome. www.stickler.org.uk Hereditary Spastic Paraplegia The HSP/FSP Support Group helps people diagnosed with Hereditary Spastic Paraplegia [also known as Familial Spastic Paraparesis (FSP)] www.hspgroup.org British Hernia Centre Provides the most comprehensive information on hernia , provided by the leading specialist unit in the world dealing with tension-free hernia repair surgery. www.hernia.org Hirschsprung's & Motility Disorders Support Network (HMDSN) An organization that makes it possible for of ordinary people and families, who's children suffer from Hirschsprung's Disease and other Gastrointestinal motility disorders to support each other. www.hirschsprungs.info HIV i-Base - HIV treatment information HIV i-Base is a treatment activist group, HIV-positive led and committed to providing timely HIV treatment information both to positive people and to health care professionals. www.i-base.info Elimination of Leukaemia Fund (ELF) The Elimination of Leukaemia Fund (ELF) was set up in 1977 to help advance the cure and treatment of leukaemia, lymphoma, myeloma and myelodysplasia. www.elf-fund.org.uk Society for Mucopolysaccharide Diseases a voluntary support group founded in 1982, which represents from throughout the UK over 1200 children and adults suffering from Mucopolysaccharide and Related Lysosomal Storage Diseases including Fabry Disease, their families, carers and professionals. www.mpssociety.co.uk Purine Metabolic Patients? Association A charity set up to provide information and support for, and to encourage research into, a group of genetic metabolic purine and pyrimidine disorders. www.pumpa.org.uk Micro and Anophthalmic Childrens Society MACS offer support and information to parents and professionals in the UK and around the world. Macs also give parents, families and children the opportunity to meet each other, support each other and learn from each other. www.macs.org.uk |
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