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| ACC or Aicardi Syndrome Corpal is a not-for-profit support group and charity run by parents, families and carers of children and adults who have ACC or Aicardi Syndrome. www.corpal.org.uk Myelin Project UK The Myelin Project is an international non-profit charity, which funds research to find treatments/cures for demyelinating diseases. www.myelinproject.co.uk Alopecia UK Provides information, advice and support for people with experience of alopecia areata, alopecia totalis and alopecia universalis. Alopecia UK also works to raise awareness of alopecia areata and supports and funds research. www.alopeciaonline.org.uk The Children's Mitochondrial Disease Network The Children's Mitochondrial Disease Network, Registered working name of the European Mitochondrial Disease Network. www.emdn-mitonet.co.uk Alström Syndrome UK Aims to help people with Alström Syndrome to provide support for them, their carers and the professionals who are working with them, and raises awareness amongst both the public and medical professions of Alström Syndrome. www.alstrom.org.uk ASSERT Provides an information pack for doctors to give to families of those newly diagnosed with Angelman Syndrome. www.angelmanuk.org AntiCoagulation Europe (ACE) Aims to give support to all patients, their families and carers on all aspects of anticoagulation therapy, as well as fostering and encouraging communication and education on anticoagulation therapy. www.anticoagulationeurope.org Speakability Supports people with Aphasia and their carers through its Information Service, national network of Self-Help Groups and programme of activities. www.speakability.org.uk Arteriovenous Malformation Offers free, patient friendly information and support to all whose lives have been affected by the rare condition Arteriovenous Malformation. www.avmsupport.org.uk The Arthrogryposis Group The Arthrogyposis Group - information, help and contacts for people with joint contracture, amc arthrogryposis multiplex congenita. www.tagonline.org.uk |
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